10 Years Pain-Free: My Life-Changing Stem Cell Procedure Anniversary

To see the posts about the procedure and my healing, check out my Regenexx page. Ten years ago, I made a decision that would change my life forever. I took a leap of faith and underwent the Regenexx stem cell procedure for avascular necrosis (AVN). Up til that point, I had spent 3.5 years on …

Navigating the Learning Curve of a G-Tube: A Mama Caregiver’s Journey

When I became a mom to a baby with a G-tube, I had no idea what I was getting into. It was overwhelming, terrifying, and felt completely foreign. If you had told me before Elle was born that I would be managing tube feeds, troubleshooting leaks, and making complex medical decisions for my baby, I’m …

The Evolution of Patient Leadership: Embracing Seasons of Impact

Patient leadership is a journey—one that twists and turns with the seasons of our lives. There are moments when we can give 110%, showing up in full force, sharing our stories, and advocating fiercely. And then there are times when life asks us to step back—whether for our own health, personal growth, or the needs …

Croner Experience with Zachary's Mission - Pulmonary Hypertension and Chronic Lung Disease post-infectious bronchiolitis obliterans.

Zachary’s Mission Gala – Croner Family Experience

During Elle’s hospital stay, the staff went above and beyond to make our experience as effortless as possible. When we first arrived, the PICU social worker provided us with a bag of toiletries and other useful items that were incredibly helpful. Throughout our time there, Elle also received little gifts and activities to keep her …

2 Different Pregnancies With Psoriatic Arthritis

The following post is an old draft written in 2020 that was never published! It’s hilarious to read this now on my 4th pregnancy. But important information to pass along to the psoriatic arthritis community regarding different pregnancy experiences. ——————————— As I near the end of my second pregnancy, I can’t lie and say I’m …