When Ricky White reached out to me asking if I’d like to review his book “Taking Charge. Making Your Healthcare Appointments Work for You”, my answer was hell yeah!. I love reading resources that may be helpful to my community. Doctor’s appointments can be overwhelming and frustrating and I know exactly how that can feel. …
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It seems that my most personal posts are always my longest. Sorry, this is so long, but writing this was as much therapeutic for me as I hope it is helpful for anyone who reads it and deals with the daily struggles of autoimmune arthritis. This month I had my 6 month check up …
This year has been an interesting year. I’ve had some really high highs, and then I’ve had some struggles along the way. But, when you really put it all into perspective, this year was fantastic. I became a God Mother, I experimented with raw vegan, I spent quality time with family, saw the Pens win …
This year I was privileged with the opportunity to attend the American College of Rheumatology Annual Meeting in DC with The International Foundation of Autoimmune Arthritis. For 3 days, we Facebook Live’d interviews with researchers and non-profits. It was pretty awesome (check out all 20+ videos here!) Julie Croner | Psoriatic Arthritis Patient Leader on …
Unfortunately, this isn’t the first time I have had problems with being called out on my invisible illness. Back in 2014, I received a note on the windshield of my car after I parked in a handicapped parking spot. At that point I was still on crutches, and couldn’t understand why someone would question me. …
September 28 – October 4th is Invisible illness awareness week. Below is the official 2015 30 things meme. Read mine and then make sure to check out the other participants here! 30 Things About My Invisible Illness You May Not Know 1. The illness I live with is: Psoriatic Arthritis. Not many people know what …
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Sooooooooooooooooo I totally jinxed myself. Last Friday I published a post titled “I Wish I Was In The Hospital”. . . And guess what, the next day I LANDED IN THE HOSPITAL! Ayyyyyyyyyeeeeee. I was in a car accident Friday evening, annnnddddd my little Volkswagen Eos was totaled. Some idiot 2 cars in front of me stopped to …
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Some of you may read this and completely relate, others may read it and think I’m completely off my rocker. There was a point in my health care journey where I would cry myself to sleep, wishing I was in the hospital, rather than at home. I didn’t really understand why I’d do this, but …
Today I’m starting a weekly post series called #Medx Mondays! Since I experienced so much during my trip to Palo Alto, I decided to chop up my take aways in, as @AuntieStress said, ‘bite size chunks’. So, drummmmmmm rollllllll please . . . My family is completely amazing. They’re so supportive and honestly would do …
Elementary school & crutches edition My knee problems started back in elementary school and I had my first knee surgery in 5th grade. Every year after that I had a brace, was on crutches, in PT, had to sit out of gym, or SOMETHING! There was always something going on. For a while I thought …